Sunday Workshops

May 6, 11:00am - 12:30pm

A Critical Review of New Therapies for Metastatic Breast Cancer

Understand the biologic mechanisms and explore the evidence substantiating the effectiveness of many classes of drugs and targeted therapies used in breast cancer treatment, with an emphasis on mechanisms active in prevention and recurrence.

Moderator: Judi Hirshfield-Bartek, RN, MS, OCN, Dana Farber Cancer Institute

Speakers: Sara Hurvitz, MD, University of California, Los Angeles; Susan Troyan, MD, Dana Farber Cancer Institute/Brigham and Women's Hospital 

Breast Cancer in Developing versus Developed Countries: Is there a Difference?

Breast cancer incidence and mortality are not the same around the world and neither are resources, cultural factors and health care systems.  Hear about the differences and similarities of breast cancer statistics, trends, policies and priorities and why developing countries should not necessarily learn from the developed ones.

Moderator: Pat Haugen, NBCC South Dakota Field Coordinator

Speaker: Kwanele Asante-Shongwe, JD, BreastSens; Joe Harford, MD, National Institutes of Health; Makeda Williams, MD, National Cancer Institute 

Breast Cancer is Not One Disease *First Time Attendees*

What really distinguishes the different types of breast cancer? Come learn about the tumor biology of breast cancer and how it affects research, prevention and treatment.
 

Moderator: Sherry Goldman, RN, NP, MSN, Revlon/UCLA Breast Cancer Center

Speaker: Susan Love, MD, MBA, FACS, The Dr. Susan Love Research Foundation

Estrogen Exposure throughout the Life Cycle:  Impact on Breast Cancer

Estrogen exposure throughout the life cycle seems to both increase and be protective in terms of breast cancer risk. Early menstruation, late menopause, nulliparity or being over 30 for a first full term birth increases breast cancer risk.  But multiple pregnancies and first birth at a young age significantly reduce risk after 50 years of age.  Windows of susceptibility after birth play another perplexing role.  Learn what the latest research says about estrogen exposure during the lifecycle and breast cancer risk.

Moderator: Vicki Tosher, Colorado Breast Cancer Coalition

Speakers: Irma Russo, MD, Fox Chase Cancer Center; Pepper Schedin, PhD, University of Colorado 

Health Care Reform: Where Are We?

It has been over two years since the “Patient Protection and Affordable Care Act” was signed into law.  Learn about the provisions currently benefitting breast cancer survivors and how the implementation process is proceeding on the federal and state level.  Receive an update on the issues currently before the Supreme Court and what their decision could mean for the goal of guaranteeing access to quality health care for all. 

Moderator: Karen Lewkowitz, Arizona Breast Cancer Advocacy Network

Speaker: Cheryl Fish-Parcham, MSW Families USA; Ian Millhiser, JD, Center for American Progress

How the H*** Do I Get On Facebook and Twitter, Anyway?

You hear about Facebook and Twitter all the time. But you don’t know how to set up your account with the privacy settings you want and how to “follow” folks. Find out how at this basic course in social media.

Moderator: Michelle Zelsman, Director of Marketing and Communications, NBCC

Speaker: Amber Versola, NBCC Emerging Leader

Mobilizing for Breast Cancer Deadline 2020® 

Building support and momentum for ending breast cancer by January 1, 2020 in communities across the country, changing breast cancer conversations to how do we end breast cancer, engaging new activists —these are all critically important grassroots mobilization strategies to achieve the goal.  How do you get started? What does it take to organize, motivate and mobilize individuals to get involved? How do you keep activists excited now and for the long run?  Learn effective skills to help you organize and mobilize your community.

Moderator: Christine Norton, MA, Minnesota Breast Cancer Coalition

Speaker: Keith Schmitz, MS, Grassroots North Shore

Nuts and Bolts of Congress *First Time Attendees* 

Explore the basics of how a bill moves through Congress, how the appropriations and budget process works, and how Congressional committees, subcommittees and staff offices are structured.

Speakers: Jennifer Berzok, JD, NBCC Women’s Health Consultant; Joanne Howes, NBCC Women’s Health Consultant

Pathogen Theory of Breast Cancer   *LEADgrads Only* 

According to the pathogen theory of breast cancer, cancers arise by the joint action of mutation and infection, whereby infectious agents evolve characteristics that greatly increase the possibilities of mutation-driven cancer.  Come hear about this theory and the importance it places on preventing infection to prevent cancer.

Moderator: Ann Hernick, Breast Cancer Alliance of Greater Cincinnati

Speaker: Paul Ewald, PhD, University of Louisville

Systems Change Theory *First Time Attendees* 

Examine the key components of research and political systems. Learn about change theory, tipping points, how change is best created and how to identify leverage factors.

Moderator: Donna Duncan, MBA, Linda Creed Breast Cancer Foundation

Speaker:  Karen Ijichi Perkins, MBA, Leapfrog Consulting

Tumor Dormancy and Breast Cancer *LEADgrads Only*

Decreasing mortality from breast cancer will require having a better understanding of tumor dormancy and recurrence.  Why can breast cancer recur years and even decades after the primary tumor was removed while others stay dormant?  Learn about what we know and need to know about tumor dormancy.

Moderator: Jessica Henderson, PhD, Western Oregon University

Speaker: Ann Chambers, PhD, University of Western Ontario

MAY 6, 2:15pm – 3:45pm 

Breast Cancer is Not One Disease *First Time Attendees*   

What really distinguishes the different types of breast cancer? Come learn about the tumor biology of breast cancer and how it affects research, prevention and treatment.

Moderator: Ivis Febus-Sampayo, SHARE

Speaker: Susan Love, MD, MBA, FACS, The Dr. Susan Love Research Foundation

Breast Cancer Vaccine Research Overview

An effort galvanized by NBCC, the Artemis Project, is tasked with developing and implementing a strategic plan for a preventive breast cancer vaccine. Several other vaccine research projects are in progress as well.  Hear an update on how these efforts are progressing, the challenges and the promise.  Will there be a vaccine ready for clinical trials within the next four years?

Moderator: Michele Rakoff, Breast Cancer Care & Research Fund, Los Angeles

Speaker: Keith Knutson, PhD, Mayo Clinic; Elizabeth Mittendorf, MD, MD Anderson Cancer Center at University of Texas

Envisioning A Future Clinical Trials Enterprise: a Call for Disruptive Innovation *LEADgrads Only*

Clinical Trials have long been viewed as the gold standard in the world of evidence-based healthcare.  Guidelines, practice, coverage, decision making, and FDA approvals depend on results of well designed clinical trials.  However, the problems and limitations of the clinical trials system pose real barriers to rapid progress towards key breakthroughs.  Hear a discussion on "disruptive innovation" and what it will take to change this system without losing the high level of evidence we need.

Moderator: Sandy Walsh, California Breast Cancer Organizations

Speaker: Robert Califf, PhD, Duke University

Going Social to End Breast Cancer

Ending breast cancer by 2020 takes a many voices. Get heard. Get social. Learn how you can make your voice heard in the space where everyone is talking—learn how social media is changing the conversation to Breast Cancer Deadline 2020®.

Moderator: Kim Tankersley, Los Angeles Unified School District Teacher

Speaker: Alan Rosenblatt, PhD, Center for American Progress

Mobilizing for Breast Cancer Deadline 2020® 

Building support and momentum for ending breast cancer by January 1, 2020 in communities across the country, changing breast cancer conversations to how do we end breast cancer, engaging new activists —these are all critically important grassroots mobilization strategies to achieve the goal.  How do you get started? What does it take to organize, motivate and mobilize individuals to get involved? How do you keep activists excited now and for the long run?  Learn effective skills to help you organize and mobilize your community.

Moderator: Kathleen Harris, Wisconsin Breast Cancer Coalition

Speaker:Keith Schmitz, Grassroots North Shore

Obesity, Energy Balance and Breast Cancer Risk

Hear a review of research pointing to obesity, metabolic factors, and energy balance as elements that influence breast cancer outcomes for disease free and overall survival.

Moderator: Ann Fonfa, BPS, The Annie Appleseed Project

Speaker: Wendy Demark-Wahnefried, PhD, RD, University of Alabama at Birmingham

Estrogen Exposure throughout the Life Cycle:  Impact on Breast Cancer

Estrogen exposure throughout the life cycle seems to both increase and be protective in terms of breast cancer risk. Early menstruation, late menopause, nulliparity or being over 30 for a first full term birth increases breast cancer risk.  But multiple pregnancies and first birth at a young age significantly reduce risk after 50 years of age.  Windows of susceptibility after birth play another perplexing role.  Learn what the latest research says about estrogen exposure during the lifecycle and breast cancer risk.

Moderator: Vicki Tosher, Colorado Breast Cancer Coalition

Speakers: Irma Russo, MD, Fox Chase Cancer Center; Pepper Schedin, PhD, University of Colorado 

Strategies for Effective Lobbying *First Time Attendees*

Get advice from congressional staff, professional lobbyists and experienced activists on ‘how to get your foot in the door’, handle difficult situations and effectively achieve the go+al. Hear highlights of some of NBCC’s past legislative victories, as well as its current legislative priorities.  Explore how the legislative process really works. Must attend “Nuts and Bolts of Congress” prior.

Speakers: Irene Bueno, JD, NVG LLC; Lisa Foster, MA, NVG LLC

The Environment and Breast Cancer:  What is the latest evidence for a link?

In December 2011, the Institute of Medicine (IOM) released a report which reviews the current evidence on breast cancer and the environment and made recommendations on actions that women might take to reduce their risk.   Did they go far enough?  If not, what  future research needs and knowledge gaps must be filled to get better answers?

Moderator: Kathleen Ball, RN, Breast Cancer Alliance of Greater Cincinnati

Speaker:Laura Nikolaides, MS, NBCC Director of Research and Quality Care Programs; Cheryl Lynn Walker, PhD, Texas A&M Unviersity Health Science Center; Gayathri Devi, PhD, Duke University Medical Center

Tumor Dormancy and Breast Cancer  *LEAD ONLY 

Decreasing mortality from breast cancer will require having a better understanding of tumor dormancy and recurrence.  Why can breast cancer recur years and even decades after the primary tumor was removed while others stay dormant?  Learn about what we know and need to know about tumor dormancy.

Moderator: Ginny Mason, RN, BSN,  Inflammatory Breast Cancer Research Foundation

Speaker: Suresh Mohla, PhD, National Institutes of Health